Time for updates...

We all are still here and doing well. I totally lost touch with my blog. Time to kick it into gear. There has been so much that has happened with us this year. I will post an seperate update for all of us.

NEXT STEP

Well we had have been to the specialist a couple times and lots of lab draws. So this is where we are at. Nicholas has low thyroid so he is taking meds to get his levels normals. We go back in about 4 weeks to retest his thyroid. Assuming it is okay our next step will be a 2 part test in and out of the hospital for about a week or two. Which will basically see how Nicholas reacts to growth hormones. He has to fail both parts to be correctly diagnosed with Growth Hormone Deficiency. His doctor is very certain this is what he has. Then pending his results he will start injection daily at home and will have to stay on them for the rest of his life as well as other meds. I was pretty bummed to hear it and took it hard at first but this condition runs in our family and my brother and uncle that have it live very normal lives. So as much as it sucks to put our little guy through all the testing, blood work, and medicines, I have realized that this is what is best for Nicholas and he will just know it has a way of life. At least it will ketch him up in height and his developmental delays should correct it self in time as well. It looks as if this condition will continue to run down the family line as it seems to be the males that may get affected by the gene but the women carry then gene and pass it down. So this will be something to watch out for with and if Brooklyn has any kids in the future. So that is what is new and where we are heading next. I am dreading the testing in the hospital but that is what needs to be done. I think I take it worst then he does. He is still not talking at all but in therapy twice a week. They are thinking of getting his some machines that will help him communicate to us. We'll see how that goes. So for now he is just a little smaller then the normal 2 year toddler and don't talk but he still runs around and terrorizes like a 2 year!

MRI Update

Brooklyn's expression is exactly how I feel! I could just cry........

So Nicholas MRI results came back and we were referred to see a pediatric Endocrinologist. We had a short visit because the receptionist only scheduled us for a 15 minute appointment and apparently we should have been scheduled for an hour. So we still don't know exactly what is going on but he does have pituitary gland issues. The pituitary cells were empty and is the reason he has poor growth. So they sent us to the lab where we thought we were going to have a bad experience and Nicholas was going to have a total melt down but he proved us & the nurses wrong. He has to be the bravest 2 year old there is or just really curious about the world around him. As they stuck his vane for 4 vivals of blood no tears, no flinches, no worries. It was smooth sailing. He was such a good boy and the nurses googled over him the whole time! We are awaiting results from a bone age x-ray and blood work to rule out other possibilities. We should have those results in 2 weeks.

Check Ups

So Nicholas and Brooklyn had well baby check ups in the last couple of weeks. I'll start with Brooklyn. She is doing well and growing great. She can roll tummy to back, started cereal but not a huge fan, plays with her rattles and toys all the time. She got her 4 month shots and took them like a champ. She weights 15.8 oz and 25 1/4 inches long! She is growing so fast. She is getting to be such a good baby and such a blessing to our family.

Nicholas on the other hand is not growing so well. He only grew 1 inch in the last 6 months which only brings him to 31" and he is 24.6 pounds. Not even on the charts. So after discussing Nicholas past medical problems our pedi decided to do a follow up MRI to make sure nothing was going on that were not aware of since he still is not talking at all, only baby babble and not really growing. So today was the day for that MRI. I think it was worst on me then him but we all survived. Actually it broke my heart when the nurses came to get him and had us wait in the waiting room. He had to be sedated and spent all morning at the hospital. The whole sedation thing scares me to no end. He recovered well as he flirted with all the nurses and ran laps around the hall with Daddy.

He also lapsed with therapy. He was re-evaluated and back at the level of a 12 month old in some areas and 15 months in other areas. He also does not talk a solid word either. So back on developmental therapy once a week while we are on a waiting list for speech and physical therapy once a week.

Late but never forgotten!

Breanna turned 4 in heaven on November 5th. I have found that this year was just as hard as the first. We did our annual tradition and we released 4 balloons each and sent them to heaven for her. I hope she knows how incredibly missed and loved she will always be. Today I look at Brooklyn and wonder a lot about Breanna, not the same as I did with Nicholas. I thanked God for giving me another daughter but it comes with a lot of different emotions, and memories. Words can not explain. As I get to experince new beginings with Brookee I wonder how it would of been with Breanna. I can only hope that one day we with be together again and until then all I can do is keep Breanna's memories alive. I love you and will always miss you sweetheart! RIP.....

I would also like to thank everyone that took the time to think of my baby girl. All the calls, emails and messages from close family and friends and a special blog wrote by Jordan's mommy! It truly touched my heart. And a special thanks to my mom and brother for going to the cemetery with me and being my support system. I love you all!

Halloween with my monsters!!!

My 3 monsters! Brandon decided to be a warewolf, Im surprised he didn't scare the little ones. Nicholas loved Brandon's costume. Nicholas was the cutest littlest Bear and Brooklyn was a butterfly princess. Halloween was fun this year for Nicholas especially once he realized what he was actually getting. Candy are you kidding me he was so excited! Brooklyn suprised us all and sleep through most of trick or treating. If you knew her you would understand why. The girl gives us a challenge whenever she can, and we still feel incredibly blessed to have her! The love you have for your children in amazing!

precious times